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I lost my dad to Alzheimer’s a number of years ago when there was no support available for the family in the community and we had to cope as best we could. Moving forward to today and being involved with the care for my father in law who is living with vascular dementia, how things have changed. We started to attend one of the DFK coffee clubs and found this a great resource not only for him with social engagement but for my wife and I as carers making connections with the DFK team. I saw this as an excellent support resource and having taken early retirement from the Probation Service I felt my skills would be beneficial to DFK and the client group so I became a volunteer. I then saw the opportunity to join the staff team so I applied and was successful in this.

This was the only role I would have come out of retirement for and I hope with the staff and wonderful dedicated volunteers at DFK we can make a difference for those living with dementia in the area.

I started volunteering with DFK in February 2022 after caring for my husband who had Parkinson’s and Dementia. I cared for my husband for 12 years throughout his journey with Parkinson’s for 8 years, then Dementia developed as well for the last 4 years. When he was diagnosed, we knew nothing about what to expect, what we should be doing, or where to go for help. We learnt a lot over that time, but there is so much I wish I had known earlier.

After my husband passed away, I wanted to help others in a similar situation, where my own experience could benefit other people.
I’ve been with DFK for over a year now and enjoy meeting people and helping them with their journey. Volunteering has given me confidence and a sense of purpose.

I retired from the police service in 2017 and took on a part-time role driving for a national funeral company and then subsequently as part of the night ambulance crew. I retired a second time in early 2021.
Retirement is meant to be ‘putting our feet up’ – but not for me.

In March 2021 I was looking at the window display at Dementia Friendly Keighley (DFK) on passing, when a volunteer came out and started talking to me about the work they do, and invited me in for a coffee. I met the ‘information and support manager’ Helen. We talked and I decided it was a place I would like to give some of my spare time to.

I started volunteering at the centre shortly after. At the time, my knowledge and experience of dementia was very limited, but with the help and support of Helen and the other centre volunteers my knowledge and experience grew considerably. Communicating with people living with dementia and their carers on a daily basis gave me new skills and confidence.

My whole view on life has changed so much so that the urge to do more within the field of dementia and develop my own personal skills has grown. I have taken a number of courses over the last 2 years giving me much more confidence in communicating with people living with dementia and understanding the needs of family members and carers.

I have loved all my work opportunities and the roles I have carried out, and I could never have dreamt that dementia and particularly the support that I can offer to people living with dementia would be so fulfilling.

I saw and applied for a job in a specialist dementia centre in North Yorkshire, and was very pleased to be offered a part time position as a wellbeing facilitator.

I’m so excited to be starting a new job and a new chapter.

But before I sign off, Dementia Friendly Keighley will always be my home, and I have to acknowledge that without the support of staff and volunteers at the centre, this new opportunity would not have happened.

I’d say to anyone thinking of volunteering with Dementia Friendly Keighley, whether or not you have experience of dementia, there is so much support within DFK to allow you to build up your knowledge and confidence in speaking to people with dementia and their carers.

Give it a go.

Although an employee of Dementia Friendly Keighley I am on secondment to AWC Modality GP Practices as a Health Coach specialising in Dementia. This means that at the point of contact with your GP, especially in that first worrying phase, I can be called to support people living with dementia and their families. I work alongside Dementia Friendly Keighley to make sure that they have any information needed.

As a Health Coach I bring my experience and skills as a ‘people person’ to help make people feel at ease talking about sometimes uncomfortable subjects and to organize a moving forward plan.”

Lesley joined our staff team in October 2022 – having been a volunteer for three years prior to that. She ran Dementia Friends sessions both face-to-face and via Zoom during lockdown. Lesley became involved with DFK when a family member was diagnosed with Alzheimers and she accessed our services.

Around that time, Lesley left her role of 20 years as the Operations Director for an online learning company and she hopes to bring some of that experience to help us here at DFK.

Monthly singing for the brain group, The Singing Teapot welcomes new people of all singing ability on the first Friday of each month at Keighley Shared Church, Market Street, Keighley 1:30-3pm. This class is run in collaboration with Rotary Club of Keighley.VIEW LEAFLET

Telephone the Dementia Friendly Keighley office on 07452 773 788 or email info@dementiafriendlykeighley.org.uk

We are moving!

Dementia Friendly Keighley will be moving into their new premises from Monday 7th February 2022, our telephone number remains the same 01535 602529

Rod Tickner - Co-Founder

In 2012 my wife was diagnosed with early-onset Alzheimer’s Disease. Prior to that, I knew of the concept of dementia but due to the rapid progression of the disease in her case meant a fast learning curve as she began to lose many functions as well as memory.

During this period I tried to find out as much as I could and was involved in some meetings held at Central Hall that lead to the formation of Dementia Friendly Keighley which I joined as a carer. I became very involved in outlying a journey through dementia which DFK produced as a booklet in 2017.

More recently I have been involved in helping to create the first dementia-friendly railway -The Bentham Line – which runs from Leeds to Morecambe and Keighley is one of their stops. Our aim was to make rail travel a positive experience for all those living with dementia and their carers with the local train operator, Northern Trains. This involved looking at stations becoming dementia-friendly, dementia-friendly activities along the local line and dementia awareness for the rail staff. Details can be found on thebenthamline.co.uk

I am now taking a lead on establishing the Voice of Experience Group for DFK, so that it can advise on current service delivery based on those who are or have been carers for those living with dementia.

If you would like to contact Rod either telephone the office on 07452 773 788 or email
info@dementiafriendlykeighley.org.uk

Having worked within the voluntary sector for over 20 years, I was delighted to join DFK as the Manager in July 2020. I have always had a desire to help those living with dementia as a Dementia Champion and in my previous voluntary role as Trustee for the charity.

If you would like to contact Julie either telephone the office on 01535 602529 or email
info@dementiafriendlykeighley.org.uk

“I am the activity coordinator at Norwood House Nursing Home in Keighley. I would just like to let you know how wonderful it has been for us to connect with Dementia Friendly Keighley.

I brought a group of our residents out to Cliff Castle park to attend the Wellness Walk that you organized. It was the first trip that our residents had been able to take outside of the home since pre-covid. It was so good for them to be in a different environment and the fact that they were able to get some exercise too was wonderful.

The Dementia Friendly Keighley staff who were there were so supportive and helpful. They made each attendee feel very welcomed. The residents left that day feeling like they had made new friends and some of them are still now talking about how much they enjoyed that event. We also attended a Tai Chi class that took place at Central Hall.

One of the great things about that location was that it triggered memories for quite a few of our residents who reminisced about youth group and community events that had taken place there. The Tai Chi class was very well organized. It was easy for us to book places and when we arrived, it was very easy to sign in. Again, the staff made us all feel very welcomed.

It is so wonderful to have a place to go where you do not need to worry about explaining behaviour and where you can be sure that each individual will be given the respect that they deserve. The teacher of the Tai Chi class was able to pace the exercises very well so that everyone was able to join in and he really connected with each individual in the class.

Our residents left that class feeling like they had done something productive and worthwhile. Every one of them expressed interest in returning for more classes. It is a little bit of a challenge for us to arrange taxis to transport a whole group of our residents so we have decided for now to attend the Tai Chi classes once each month. We are looking forward to staying connected to the Dementia Friendly Keighley organization because the services that you provide are so valuable to both our residents and the relatives of our residents.

You are also a great support and resource for those of us who are working with and taking care of people suffering from dementia. Thank you for all that you do.”

“I’ve been at the group from the beginning and watched it grow. The Brown Cow pub is an ideal place as there is no music or TV to drown out any conversation and the customers and staff are all very friendly and make people feel welcome. The people who attend the group are of all ages and not just the older end

The benefits of the group are that it’s nice to have somewhere to go and meet people who have been or are going through the same things as you. You can chat about any problems you may have and know that others will understand and know exactly what you are talking about. Even if you talk to experts, they don’t understand as they haven’t lived with or cared for someone who has dementia – they can only give textbook information.

Everyone seems to know a little bit about something so can point you in the right direction. I had no idea you could get concessionary tickets for the cinema/theatre/bus pass or blue badges for people with dementia. It’s also lovely to be able to go out on an evening for a drink and chat with friends as this is what we are ‘friends’.

The covid lockdown was a bit of a blow as people missed seeing each other and couldn’t go out. A weekly zoom meeting was arranged for everyone which was great and continued throughout both lockdowns. It wasn’t as good as meeting in person but it was great to see everyone every week for a catch-up and to see how everyone was. It was nice to have the support when David went into care and also for another person whose husband went into care at roughly the same time.

It was a bit difficult if a couple of people were trying to talk at the same time. It was found that those living with dementia couldn’t cope with the zoom meetings. Some thought we were actually in the room, others couldn’t understand seeing people talking on the screen. In the end, they stopped participating in the zoom meetings as the carers were sometimes having problems afterwards trying to calm them down. Even though we are now back at the pub not everyone living with dementia has attended but hopefully, they will soon.

We have all become quite good friends and four of us are all going away to Northumberland for a week’s holiday in September. Never thought that by going to the put on a Thursday we would strike up such a good friendship and become special friends.”

“When we went into lockdown in March 2020, we knew that this would have a significant impact on the residents and their loved ones. The home has always welcomed visiting at any time and was a vibrant and busy place prior to the pandemic. DFK recognised that it was a very challenging time for people living in care homes and for the staff caring for them and contacted me to ask if there was anything they could do to help us. We are a big care home, caring for a large number of residents living with dementia and with the help of DFK had gained our “Working towards being Dementia-friendly” Award in 2019. Both residents and staff had supported DFK with their fundraising events, the opening of their shop/drop-in centre and I had been invited to speak at their last AGM in January that year.

We needed to look at alternative ways of communicating with relatives and friends and one of the ways we did this was using Zoom. Initially, Staff were able to facilitate this on their mobile phones but the screens were small so we started to use the home’s laptops and iPad which still proved quite difficult for the residents.

During the summer months, we were able to facilitate outdoor visits but in the Autumn, and as we went into another lockdown, the weather turned colder, we recognised the need for a virtual visiting room. This is where DFK helped us. We worked with them to set up our “Zoom Room”. Following discussions with Hannah, DFK provided us with all the equipment to do this which included a large TV, laptop and microphone and camera. It didn’t take long to set up, it was a simple idea that made a huge difference to some of our residents and their families when they could not physically visit them in person.

Residents were supported to go into a lovely spacious room that was private and see their loved ones on a large screen. This was great for residents with sight and hearing difficulties and a massive improvement on seeing their relatives on a mobile phone or Ipad. It was hugely successful; one resident “virtually” celebrated her 97th birthday with all her family, residents connected with family members living both nearby and far and one resident used it to continue with his Parkinson’s Support Group Meetings.

As internal visiting started, we continued to use our Zoom Room. We have used it for virtual physiotherapy and dietician meetings, student nurses have accessed it for their training and residents still access it for keeping in touch with relatives that live far away.

The help and support from DFK enabled us to support residents to maintain much-needed contact with their loved ones, which has been crucial during the restrictions”

Bev Burne – Dementia Connect Local Services Manager, West Yorkshire – From 2017 to 2019 there was a developing relationship between the two organisations. This relationship originated at the start of the development of Dementia Friendly Keighley when Bev Johnson, Dementia Adviser, was involved in speaking and facilitating at a Keighley wide event looking at developing community support for people affected by dementia.

The localised offer of Dementia Friendly Keighley volunteers and staff complements the district-wide work of the team at Alzheimer’s Society Bradford.

Alzheimer’s Society is able to signpost people to a range of activities and groups and services within Keighley and Dementia Friendly Keighley can signpost on to district-wide activities, groups and services.

Our knowledge of each other’s activities, groups and services worked well as a member of the Alzheimer’s Society was based in the Keighley Drop-in centre for one morning a month. This allowed stocks of materials to be refreshed both ways and an information swap on newly started or ended groups etc.

A Dementia Advisor was able to offer face to face information and advice to people by appointment or drop in during this time. This time was also spent showing volunteers and staff our website and the range of materials available on it. These mini contacts with people sometimes led to full assessment visits from our staff or to ongoing contact through our groups.

We also had an annual stall at the fundraising event in the shopping centre allowing us to raise awareness of our services to a greater number of people.

Steve Seymour – Airedale Shopping Centre Manager“Airedale Centre is in my view one of the most fortunate shopping Centre’s not only in the UK but across the whole shopping centre industry in having DFK as a Tenant and Partner and the essential free services, advice and support it provides to our customers and the area. Not just in Keighley, anyone who knows someone with dementia knows only too well the daily challenges they face and whilst the various Government and National agencies are there to support they do not deliver at the personal level that DFK can and have done over the years.

Having started as a small group working from a tabletop on the Malls, engaging with Customers to where they are now, is nothing short of a miracle especially as they like all businesses have had to manage the last 16-months under covid 19 and the challenges this has posed to their Customers who were stopped from seeing their loved ones in care homes and the isolation due to the need to self-isolate. So having a daily call and friendly voice to speak to and help them manage this incredibly difficult period were for me, lifesavers.

Having been part of the DFK Team from the first meetings and the Team that set up DFK I have personally learnt so much and gained more than I can say about dementia and its impact on the person with dementia and their family and how little was being done to allow them to stay active in the community. This included the lack of any guidance for shopping Centres on making them more accessible unlike the information for hospitals and care homes which can easily be transferred into the design and planning for shopping centres such as the choice of entrance matting font and size of writing and most importantly staff training.

Virtually all shopping centres will proudly shout about their DDA compliance and consider deafness, blind and wheelchairs for disability, very few will consider dementia and train their staff to know how to support a Customers living with dementia and this is or was also the case for retailers national and independent retailers who need specific support around training which DFK have tailored and adapted successfully in Keighley as one size does not fit all and this has made a positive impact on all the businesses who have been supported by DFK and their ability to recognise and support Customers allowing them to stay active in the community.

Keighley through DFK and their success is a town well ahead of the rest of the UK and has set standards for others to follow and again DFK has been instrumental in supporting other dementia groups set up and develop using their knowledge and experience. Also supporting network rail to create a dementia-friendly line and a programme to extend this along with staff training and awareness. The Centre has also used our experiences and learning to pass this on throughout not only our managing agents and client portfolio, but the whole shopping centre business to try and improve awareness of the impact caused by dementia not only to our customers but also our colleagues and how we can better support them. The Centre is proud and honoured to have DFK as a Tenant and a unique asset providing free essential advice & services, filling in missing links not provided by the government or NHS.”

Elizabeth – The Memory Tree – “In July 2018 DFK contracted us to run the Respite & Reminiscence service (R&R) which ran every Thursday to offer carers the opportunity to have a break of up to 2.5 hours to go and do their shopping/attend appointments/just have a quiet coffee whilst we ran activities in the DFK Office for the person with dementia. Due to COVID -19 this stopped.

In April and May of 2020 we began to pilot a ‘Lending Library’ scheme whereby Nichola would take bags of resources out to the families who had been using the R&R service to help carers keep the people with dementia occupied at home. It was also possible for Nichola to talk to the carers & people with dementia from the garden which provided vital human contact during this stressful time.

At the beginning we made educated guesses as to what people would like from what we knew of them from R&R and fine tuned this by using feedback forms. With the funding from the Dementia Inequalities Partnership we worked with DFK to offer the service out to new people and to purchase new resources based upon popularity.

Resources that proved most popular were jigsaws, particularly specialist ones for people with dementia that have small piece numbers but pictures suitable for adults, social history books with pictures of people, products etc from 1950’s – 1970’s, magazines, colouring packs, and dementia-friendly puzzles/quizzes etc downloaded from Golden Carers. In addition to working with DFK to build up the resource library, we developed robust risk assessments for control of the virus and, later, to permit home visits when some of the initial restrictions of the first national lockdown were lifted.”

Dementia Friendly Keighley are set to launch a new session aimed at helping those living with Dementia, to build strength, improve balance and promote deep relaxation.

The hour-long sessions will take place every Tuesday afternoon at Cliffe Castle, and will include walking, Tai Chi and friendly chat with like-minded people, volunteers and the session hosts, Phil and Helen.

Phil Sheridan of Discover Tai Chi explains “At a time when the Covid pandemic is causing people high levels of anxiety, practising Tai Chi can lead to a deep sense of relaxation. Tai Chi is traditionally enjoyed outside, combines flowing movements with breathing and relaxation; helping people manage their own mental wellbeing.”

Phil Sheridan and Helen Parsons run Discover Tai Chi from their Yorkshire base, offering this traditional art form through a new evidence-based approach and teaching methods.

Phil continues “Green spaces, even a view out of a window onto a garden area, can help people cope and manage better. Research backs up our feelings that when we visit green spaces, we move into a state of mind called effortless attention. Feelings of anxiety, frustration and depression reduce as we find relief from stress and mental fatigue.

We often encourage people who take part in our classes and workshops to see if they can find a little private space, a garden if they have one, where they can enjoy their tai chi movements outdoors. The new lockdown rules still allow people to exercise outdoors and so finding a quiet corner in a park to practice is an ideal way of combining the benefits of nature and Tai Chi.”

If you would like to find out more about Dementia Friendly Keighley and its events, please visit www.dementiafriendlykeighley.org.uk or search Dementia Friendly Keighley on social media.

Phil Sheridan and Helen Parsons, of Discover Tai Chi, with Dementia Friendly Keighley’s Elizabeth Joyce and Maggie Marsden

Dementia Friendly Keighley and Herncliffe Care Home have been working together to set up a Zoom room for residents to talk and see their families. Many of the residents have not seen their families since the lockdown in March 2020 and through the Dementia Inequalities Partnership, which is funded through the West Yorkshire and Harrogate Health and Care Partnership, have been able to set up this much-needed resource.

Helen Harper, who is a resident at Herncliffe Care Home was the first to pilot the Zoom Room and was able to talk and see her family. Helen’s niece, Alison Polydor said “We really enjoyed talking to Auntie Helen on the Zoom call and really appreciate Dementia Friendly Keighley’s approach to find a solution to the heartbreaking situation of not seeing loved ones for months. It was lovely to actually see Auntie Helen, especially as I haven’t been able to visit her since 1st February”

The manager of Herncliffe Care Home, Mary Harrison, said ” this had been a much-needed resource for our care home and now residents can have contact with their families. This contact is so important and I am very proud of the staff here at Herncliffe Care Home for supporting the idea and thank the Dementia Inequalities Partnership for the funding to set this up”.

The manager of Dementia Friendly Keighley, Julie Lintern, said: “This is such a terrible time for residents of care homes and their families and we are so glad we have been able to provide a resource that will help the residents to talk to and see their families”.

The Dementia Inequalities Partnership started in September and includes other partners such as Bradford District Care NHS Foundation Trust, Modality Partnership, Carers Resource, The Memory Tree, Meri Yaadain and local Dementia Communities.
Dementia Friendly Keighley are the lead partner and if you would like to find out more please contact DFK on 01535 602529 or email info@dementiafriendykeighley.org.uk

10 Common Symptoms - Audio Information Sheet 5:39
Caring for Carers - Audio Information Sheet 2:31
Dementia and Maintaining a Healthy Diet - Audio Information Sheet 3:35
Dementia and Staying Hydrated - Audio Information Sheet 3:10
Maintaining Verbal Skills - Audio Information Sheet 2:39
Managing Anger and Verbal Aggression - Audio Information Sheet 3:00
Managing Memory Loss - Audio Information Sheet 2:48
Manging Episodes of Incontinence - Audio Information Sheet 2:52
Measures to Prevent Incontinence - Audio Information Sheet 3:06
Stages of Dementia - Audio Information Sheet 6:43
Steps to Diagnosing Dementia - Audio Information Sheet 2:53
The Importance of Exercise - Audio Information Sheet 2:46
Wanting to Leave the House - Audio Information Sheet 2:52
Dementia in Ethnic Minority Communities - Audio Information Sheet 3:02
Ramadhan, Eid and Dementia - Audio Information Sheet 3:52
Music, Songs, Rhythm and Recitation - Audio Information Sheet 3:20

Rod Tickner – Volunteer and Founder Member of DFK – “When a diagnosis of dementia is given some may be unwilling to admit the fact. There is a sense of loss and the need for an adjustment that needs help to chart you through the changes, some unwelcome, as the illness develops.

When you have lived and loved through life experiences such as dementia you can either retreat into yourself or reach out to others treading a similar path and help them through their pain and confusion.

This was how I became involved with the embryonic DFK and using the experiences of others was able to prepare our booklet “A Journey Through Dementia”. Through this, I learnt a lot very quickly and also enabled the local railway line to become the first dementia-friendly railway. Throughout there has been a desire to make the experience less daunting and easier for those who follow.

The Dementia; Voice of Experience Group provides a focus for ensuring that all that is done will reflect the vast store of experience gained by those who have gone before – of whom I am one.

My role in DFK’s Dementia; Voice of Experience Group could be likened to a relay race where the baton is handed on to new fresh runners and those who ran the first lap step back to cheer on those who follow.”

The sessions online were very difficult and hard to access for many. The tutors are amazing and give so much support to the people who participate.

People are so focused on the movements and give you a feeling of space, relaxation and wellbeing.
I attend as a volunteer, but both I and the carers also benefit, along with the person living with dementia.
I take part as I enjoy supporting a mix of people, it has opened my eyes to the struggles people face and I personally benefit from taking part.

We have a care home who attend and they really enjoy the class as they are fully supported by the tutors and cater for their needs”

Phil and Helen – Discover Tai Chi – “We met Maggie from DFK at a free taster at local GP practice and she immediately wanted to see if we would offer our tai chi sessions for people and their carers living with dementia.

We began our specially adapted classes at Holden Hall, Oakworth, in 2019. We had to be mindful that we would have a range of participants in the class, some needing to sit throughout the session, and those needing the support of a carer. We introduced movements that participants could easily follow and made sure everyone felt involved and received a warm welcome.

We had lots of laughter and smiles throughout the sessions. Helen and I found them a real joy to facilitate. It was important to continue where possible to support all those people who came to the group and enjoyed it.

We had to stop classes initially and then we tried classes on Zoom. We found that for some people Zoom has provided a weekly activity to maintain routine and structure to their week during COVID. Many people were not able to use Zoom or did not wish to use it to learn Tai Chi.

Lack of regular day to day activities such as shopping and visiting local places during COVID has meant there has been a drop in physical activity levels leading to a decline in aerobic fitness, muscle strength, balance and coordination. Participants notice that to return to daily tasks and hobbies or continuing their caring role they are more out of breath, feel more tired and more unsteady on their feet.

Continuing physical activity or restarting activities that improve fitness, strength and balance are now critically important. We know these can be improved at any age with the right exercise.

We ran some outdoor sessions over winter when most indoor activities had to stop. We hoped to provide a short walk around the local park with some mindful Tai Chi movements. Green spaces are well proven to improve wellbeing and we felt it was important to try this option to help DFK members get some exercise and relaxation during a very isolating winter. Sadly due to very cold weather, we were unable to get any interest in the outdoor session.

We have reopened in a more central venue which is better for links to public transport. We have to maintain a social distance during the sessions which means some of the partner activities we used to do are no longer allowed. However, we have still been able to build rapport with the group and provide an entertaining exercise session.

Working with DFK has given us direct access plus support via their fantastic volunteers to work with people with dementia and their carers; who are particularly at risk from deconditioning due to a lack of accessible exercise sessions.

We are enjoying providing sessions in the new venue, welcoming past participants and new participants to the sessions and sharing the benefits of these amazing exercises called Tai Chi and Qigong”

As the Inclusivity Worker at Dementia Friendly Keighley, my role entails raising awareness of all the excellent services provided by DFK for people with Dementia, particularly those from the BAME community. I intend to liaise with all communities within Keighley to help remove the stigma surrounding Dementia by making people aware that Dementia is NOT a normal part of aging and can happen to anyone.

My previous experience in retail, dental and the volunteering sector enabled me to discover my passion for going the extra mile for helping those in need.

Being a young British Bangladeshi woman from the local community, I am aware that not everyone has the support they need when it comes to dealing with Dementia and mental health. I wanted to work for DFK, as I saw it as a means to help those not aware of the support on their doorstep and those who have difficulties reaching DFK. Also, working for DFK would have allowed me to support my local community through their individual Dementia journeys and through the most vulnerable time of their lives which would be very fulfilling and rewarding.

If you would like to contact Shomana, please email shomana@dementiafriendlykeighley.org.uk, or telephone 01535 602529

As a dementia specialist care home provider, I am well versed with the challenges faced by individuals, who suffer from dementia and the trauma that families go through.
I have experience in providing holistic support to both families and loved ones throughout the different stages of dementia. I extend my responsibility of sharing the information on dementia care throughout my positions in Rotary Clubs and different Carer Panel boards.
As a practicing Sikh, one of the fundamental pillars of my faith is to provide ‘seva’, an act of service over self, and ‘chardi kala’, ascertaining high spirits, hope and a positive state of mind.

If you’d like to get in touch with Baldev, please email baldev@dementiafriendlykeighley.org.uk

I am a qualified accountant and worked at a senior level in the NHS for 38 years. I have a broad experience of all sectors of the NHS, including mental health and community services. Prior to retiring, I worked for a short time with Keighley and Ilkley Voluntary Community Action, which was my introduction to working with the voluntary sector.

As a Trustee for DFK, I am hoping that my experience in finance and business planning will be of practical use in building a successful and sustainable future for the organisation.

If you would like to contact Janet, please email janet@dementiafriendlykeighley.org.uk

After a career as a teacher of Maths and as an Education Officer for Wirral Borough Council, I retired and moved to Yorkshire to be near my family. I was asked if I would be willing to work on the Board of Trustees of Dementia Friendly Keighley. My father suffered from Alzheimer’s for several years, and so, like many people, I have a little knowledge of dementia and its implications for the sufferer and for carers, family and contacts. I hope that I can contribute to the work of Dementia Friendly Keighley.

Maggie Marsden - Treasurer for DFK

About four years ago the Alzheimer’s Society started working in Keighley to kick-start a dementia-friendly community campaign. Although I had come across people with dementia in my career as a nurse I had no experience of dementia within my own family and had no real understanding of the massive impact the disease has on individuals and families.

The Alz Soc organised an open meeting, which I attended to see what all the fuss was about. It was plain that dementia had been a hidden and isolating illness and volunteers were needed to start to make changes. Awareness-raising was clearly going to be a vital part of the process to create Dementia Friendly Communities so I volunteered to train as a Dementia Champion.

Since then I have recruited over 400 Dementia Friends in the Keighley area. I also volunteered to sit on the committee that would oversee the efforts to make Keighley more dementia-friendly and became the treasurer. I also helped to set up a seated exercise class, run a singing for the brain group, attend meetings of our young persons’ group and do all manner of fundraising things. All these things I do as a volunteer; so never underestimate the value of volunteers, remember Noah’s Ark was built by volunteers, The Titanic was built by professionals!

If you would like to contact Maggie either telephone the office on 01535 602529
or email maggie@dementiafriendlykeighley.org.uk

I had a nursing career spent primarily looking after older people, many of whom had a cognitive impairment, so dealing with and trying to understand people with dementia has been both my daily bread and my personal interest. In (semi) retirement I continue to work with impaired people as a Mental Capacity Advocate.

It is my goal that dementia is normalised in society. Whilst we continue to find ways to treat or prevent dementias (and we must), we should also work towards the day when it is no more remarkable than a walking stick or going bald. Not something to be feared or laughed at, but just accepted as another aspect of our humanity. People with dementia still have a place; society is still theirs too.

And anyone of us can develop dementia at any age. We have a shared interest in getting this right before it’s our turn.

If you would like to contact Andrew, either telephone the office on 01535 602529 or email
info@dementiafriendlykeighley.org.uk

Roy williams - Project Worker

My passionate interest in DFK relates to my parents…my dad is now in Herncliffe nursing home living with dementia at the age of 96 years young!…my mother died a year ago at 99yrs young, and both parents moved from Poole, Dorset to be cared for by my wife and I as they were having falls and losing their memory

I’m presently working on a National Lottery funding bid to deliver information and awareness sessions targeting ethnic minority communities in Keighley…Dementia does not discriminate, it affects everyone.

If you would like to contact Roy either telephone the office on 01535 602529 or email
info@dementiafriendlykeighley.org.uk

Hannah Lindsey - DFK Co-ordinator

My role with Dementia Friendly Keighley started as a partnership supporting role through Keighley Healthy Living and have continued to support in a freelance capacity. My role has included coordinating projects, developing systems, supporting recruitment and providing monitoring reports.

I feel Dementia Friendly Keighley has been so successful due to the determination and drive of its Trustee Board and Board Members, and it has always been a pleasure to help support the success of Dementia Friendly Keighley. I believe the projects and sessions Dementia Friendly Keighley reach and engage the local community and offer much-needed support.

I am excited about the next chapter with Dementia Friendly Keighley and the introduction of 2 new staff members who I believe will continue the successes of the past 4 years.

If you would like to contact Hannah either telephone the office on 01535 602529 or email
hannah@dementiafriendlykeighley.org.uk

I feel both pleased and privileged to be able to contribute to the wonderful work already undertaken by the staff and volunteers at Dementia Friendly Keighley. I hope that the extended Saturday opening times will help this successful and expanding local charity to provide help and support to those who are unable to call in to see us during the week.
My background is within both the local government and the NHS, but, like so many, I also have personal experience of caring for family members with dementia.

Dementia touches the lives of so many of us and affects people’s lives in so many different ways; many of which are so difficult to deal with. If you are affected by dementia, I hope you will pop in and see us for support, information or help, or just a cuppa and a chat. We are here to help you when you need us.

If you would like to contact Julie, either telephone the office on 01535 602529 or email
info@dementiafriendlykeighley.org.uk

I have lived in Keighley all my adult life, and have a keen interest in the range of healthcare support available in the district.

My mother was diagnosed with vascular dementia in her early 80’s. She died a couple of years later, during the early days of DFK, which was a shame, as I am sure she would have benefitted from some of the support that is now available.
After originally training and working as a Secretary, I moved into teaching and worked for 30 years at Keighley College. After taking voluntary redundancy, I took over and ran a small IT training company for a number of years, and was also involved in the running of my husband’s business.

Currently, I serve on the Management Committee of Keighley & District Agricultural Show Society (also a registered charity) both as a Trustee and for 25 years as Treasurer. I am also a Public Governor representing the Keighley West & Worth Valley Wards for Airedale NHS Foundation Trust.
I am happy to offer my secretarial and administrative skills, (including years of experience taking Minutes at meetings!) to support the DFK Trustee Board in their work

If you would like to contact Christine either telephone the office on:
07452 773 788 or email
info@dementiafriendlykeighley.org.uk

I was one of the small group of people who initially set up Dementia Friendly Keighley. After a couple of years I needed to step back to help with caring for my Mum who was by then a couple of years into her own Dementia journey. Mum died in March 2019, but the challenges for our family when supporting and caring for Mum, and our battles for services to support her and my Dad, have motivated me to get back involved with DFK. I’ve learnt a lot over the last 5 years that can hopefully contribute towards improving other peoples’ own journeys through Dementia, working alongside my fellow Trustees, the DFK staff and volunteers and build on the great work DFK are already involved in.

I have an eclectic background, having worked in many different roles within the NHS, community services, and the voluntary sector. I’ve also run my own self-employed training and consultancy business working in these fields for many years and have served as a local Keighley politician (Councillor) and worked for an MP too….so I have experience in how the state and public systems work….and do not work too! I’m now retired from paid work, but am also active in a range of other community organisations locally, all of which keeps me very busy and engaged in Keighley and the wider Bradford District.

If you would like to contact Jill either telephone the office on 01535 602529 or email info@dementiafriendlykeighley.org.uk

In my role as a Dementia Support Officer, I really enjoy helping to make a positive difference to the lives of people living with dementia & their loved one or carer and seeing the impact that our services make to them”.

I have many years of experience working in social care and supporting people living with dementia including working for The Memory Tree, Kirkgate Community Centre, Hale Project and in nursing/care homes.

If you would like to contact Nichola either telephone the office on:
07452 773 788 or email nichola@dementiafriendlykeighley.org.uk

In my role as Media & Connections Officer, I create a wide range of content for both on and offline use, it is also part of my role to manage the website and social media accounts, as well as write regular press releases and any advertising strategies that are needed.

I have been working in marketing for over 10 years, with organisations ranging from public events to a Business Improvement District. These roles have helped me to pick up a wide range of skills, all of which will help me to promote DFK to the people and communities they currently and are hoping to support.

If you would like to contact Tim, either telephone the office on 01535 602529 or email
tim@dementiafriendlykeighley.org.uk

In my role as Group and Volunteer Support Officer, I work on setting up our groups and activities, as well as supporting our volunteers. I believe that our volunteers are really the heart of our organisation and I am passionate about supporting them in the fantastic work that they do here at Dementia Friendly Keighley.

My professional background is working in the finance sector but I have also worked in the voluntary sector for a number of years, supporting people with their mental health and wellbeing within the community.

If you would like to contact Emma, either telephone the office on 01535 602529 or email
emma@dementiafriendlykeighley.org.uk

As Information and Support Co-ordinator, I am here to oversee the smooth running of the office. Our aim is to provide support, guidance and activities for families, carers and individuals affected by Dementia in the Keighley area.
My professional background is finance, but my interest in the work of Dementia Friendly Keighley is personal. My mother lived with Dementia for six years and together with my father we cared for her at home up until the last six months of her life. I understand the challenges people affected by Dementia face and feel passionate about helping others who face similar challenges.
Its time to make a difference and help people to live well with Dementia.

If you would like to contact Helen either telephone the office on 07452 773 788 or email
info@dementiafriendlykeighley.org.uk

I have recently retired from a management position in NHS England where I specialised in providing the evidence for delivering better care, better health and better value in a wide range of health setting.

I have experience of living with dementia and know how challenging it can be. Dementia Friendly Keighley brings together people with energy and passion to offer help and advice so they can make a difference to peoples lives across the district.

I see my role as a trustee to support all those involved with DFK so we can keep moving forward on our objectives, while making best use of our limited resources.

If you would like to contact David either telephone the office on:
07452 773 788 or email
info@dementiafriendlykeighley.org.uk

I have worked within the voluntary sector as long as I can remember. In my role working for a large national charity my professional career progressed from support worker, project leader to team coordinator and spanned over 10 years. The service provided activities building based, home based and community for people with a disability, the main emphasis being personalised support, skill development and inclusion. I have previous experience of working for the NHS on an assessment unit for people 65years or older as part of the mental health team. Now semi-retired, working from home, marking health and social care papers and working part time as a health care for BDCT.I am well aware of the importance of raising awareness of mental health in the community and I am proud to support DFK as a trustee. I really believe they can make a difference.

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If you would like to contact Diane either telephone the office on 07452 773 788 or email
info@dementiafriendlykeighley.org.uk

Dementia Friendly Keighley (DFK) offers a friendly and professional service free of charge so that carers of people with dementia can enjoy a well-deserved break. A variety of stimulating and enjoyable activities will be provided so that people with dementia can enjoy social time with us and with each other whilst their main carer is away doing a little shopping or enjoying a quiet coffee nearby. Sessions run for up to 2.5 hours and may include: • Reminiscence • Simple quizzes, games & jigsaws • Arts & crafts • Singing & music • Gentle seated exercise • Classic films/comedy on DVD Refreshments are served on arrival and half way through

Venue: DFK Office, 48 Towngate, Keighley, BD21 3QE.
Day/Time: Every Thursday 10:00am-12:30pm and 1:30pm-4:00pm

VIEW LEAFLET

Telephone the Dementia Friendly Keighley office on 07452 773 788 or email
info@dementiafriendlykeighley.org.uk

Social Group - Thursdays 18:30 - 20:30 - Brown Cow Pub, Off West Lane, Keighley

This social group is for people with dementia and their carers to meet with friends for a chat and mutual support over a pint. The group meets in the early evening and would like to welcome new friends to join them. This is a good time for a beer and is also helpful for carers who work and can’t attend daytime activities and events.

VIEW LEAFLET

Telephone the Dementia Friendly Keighley office on 07452 773 788 or email
info@dementiafriendlykeighley.org.uk

Exercise Class - Monday 11:15am - 12noon - Central Hall

The exercise class is a friendly and fun class and is led by Janice who is a health and fitness expert
The class is on a Monday 11:15am-12noon (excluding bank holidays), at Central Hall.
We welcome all abilities, even if you haven’t exercised for a while, you will be sure to enjoy the exercises. Wear clothing that allows you to move and all exercises are completed sitting down.
After the class there is a light lunch and an opportunity to socialise with other people.
The class is free of charge and a donation box is available should you want to make a small contribution.
So to find out more either contact Dementia Friendly Keighley or pop in to Central Hall and have a look for yourself.

VIEW LEAFLET

Telephone the Dementia Friendly Keighley office on 07452 773 788 or email
info@dementiafriendlykeighley.org.uk

Steve Seymour - Vice Chairman

“I joined DFK to try and help make a difference in retail & shopping centre’s as unlike hospitals & care homes wehave no guidance notes or Regulations specific to Dementia and I wanted to be part of a group looking to improve the quality of life for everyone affected by Dementia in all aspects of their life. This group has clear ideals & ambitions is motivated, passionate and committed to making Keighley a Dementia Friendly town and being the Chair of this team is an honour and working with the Keighley and wider community has and is making a difference.”

If you would like to contact Steve either telephone the office on 07452 773 788 or email info@dementiafriendlykeighley.org.uk

Information & Chat (Mon 1-4pm; Wed 10-4pm; Fri 10-1pm; Sat 10-2pm)

The Office and Chat session is open to the general public to drop in and find out more about Dementia Friendly Keighley in general or to find out about what support is out there. The Dementia Friendly Keighley office is situated in the Airedale Shopping Centre, supported by staff and volunteers and welcomes people to pop in and have a chat. If the team can’t answer your question they will be able to signpost you to someone who hopefully can help.

So please pop in and come meet the team!

Telephone the Dementia Friendly Keighley office on 07452 773 788 or email
info@dementiafriendlykeighley.org.uk

Community Action Bradford & District

We have offices in Bingley, Bradford, Ilkley and Keighley, providing outreach support across the district.
Our role is to develop, support, promote and represent the interests of voluntary and community sector organisations and groups.
We do this by helping groups of local people to work together on things that concern them, such as childcare, health and improving the area in which they live providing advice and services to voluntary groups to enable them to be more effective promoting to the Council, the NHS providers and to Government Agencies, the role of community groups in improving people’s lives

VISIT SITE

Keighley Memory Club - Every 2nd and 4th Friday 1.45pm-3.30pm - Keighley Shared Church Hall

The Keighley Memory Club is organised and delivered by the Memory Tree. Friendship and support for people with dementia and their carers.
Every 2nd and 4th Friday of the month, 1.45 to 3.30 pm

Telephone the Dementia Friendly Keighley office on 07452 773 788 or email
info@dementiafriendlykeighley.org.uk

For details please call Dementia Friendly Keighley

07452 773788

Carers' Resource

Carers Resource works in partnership with Dementia Friendly Keighley to provide support for unpaid carers. We meet carers in the office space and provide information on benefits, respite, care services, carers rights and planning for emergencies. We offer time for in-depth discussion around Carers health, promote self care and encourage motivation.

VISIT WEBSITE

Alzheimer's Society

The Alzheimer’s Society offers information and support from diagnosis and through the dementia journey for people affected by dementia including carers, relatives and friends, we also work with professionals. We provide trained workers that will take a person centred approach and advise or work directly on all areas of life that dementia impacts, including managing the condition, coping strategies, benefits, planning for the future and developing social networks. We offer phone or face to face meetings to suit, we can meeting at a venue of your choice including home visits.

We are pleased to support the work of Dementia Friendly Keighley in their work and attend their drop in service monthly, if people require a more in depth discussion we can arrange an appointment at the drop in which can be arranged directly with the DFC Keighley team or by contacting ourselves.

VISIT SITE

Wellbeing Cafe - 1:30 -3:30pm (3rd Monday of month) - Central Hall, Alice Street

The Wellbeing Cafe is organised and delivered by Keighley Healthy Living. Keighley’s Wellbeing Café provides support to older people with mild to moderate mental health needs and their carers. We meet for a few hours of fun, friendship and the chance to socialise, with entertainers, support, advice and information.

At Keighley’s Wellbeing Café you can:

Be with your partner and be yourself for a few hours.
Share your experience with others in a similar situation.
Get advice on the services available.

The Wellbeing Café is held on the Third Monday of each month from 1:30pm until 3:30pm at Central Hall, Alice Street, Keighley, BD21 3JD. Costs £2 per session.

Telephone the Dementia Friendly Keighley office on 07452 773 788 or email
info@dementiafriendlykeighley.org.uk

April's Story

I first came across DFK when I stopped to talk to Sandra & Maggie at the Information Stand in the Airedale Shopping Centre. I said I would like to volunteer and started by helping at the first Dementia Fete staffing the Craft Stall. I then went onto help at the weekly seated Exercise Class, which I still enjoy. I also assist in the Information Centre one or two mornings a week. I so enjoy my volunteer role. I love meeting new people & listening to their stories. Making a difference in helping others has helped me with my own wellbeing too. It has given me much more self confidence and a sense of purpose and is something I always look forward to. I have also made lots of new friends. I would say to anyone thinking of becoming a volunteer, try it, you won’t regret it.

Co-op Donations

The Co-op has chosen our Exercise Group to receive 1% of all members sales in store from certain items, plus the 5p levy on the plastic bags. The more members that join, the more money we will get, so please support this if you can!

Working with your local Co Op raising money to help people in Keighley to live well with Dementia:
click on the attached link to find out more https://membership.coop.co.uk/causes/14070/

Magic Mavis - Swimming Challenge!

Magic Mavis Richardson will be taking up a swimming challenge during Dementia Awareness Week in May to raise money for Dementia Friendly Keighley. Octogenarian Mavis will swim one length for each year of her life and hopes to raise at least £1000.

More details about Mavis, her challenge and how to donate can be found at:

https://mydonate.bt.com/fundraisers/ianbraithwaite1

Kathryn's Story

I have no personal experience of Dementia; however, I was looking for a worthwhile charity to help with volunteering. I kept reading articles in the local newspaper about the work of Dementia Friendly Keighley and it seemed to be a charity that had goals and got things done.

Working as a volunteer, I have learned so much about Dementia and how it affects families and that providing advice and support to carers is essential. Although the condition is challenging, the Dementia Friendly Keighley drop in provides a positive environment where I can make a difference and I leave the office feeling upbeat having achieved something worthwhile.

Jean's Story

When my father was diagnosed with Dementia, I had very little knowledge of the condition and as a family we felt quite isolated, feeling there was nowhere we could go for advice.
When my father passed away at 78 years old, I felt I wanted to help other people living with Dementia. I was recommended by an existing volunteer to get in touch with Dementia Friendly Keighley, I enjoy meeting people and have learned so much about the condition whilst volunteering.

Keighley Healthy Living

Keighley Healthy Living are fully committed to supporting Dementia Friendly Keighley and people living with dementia.
We are a Dementia Friendly organisation with all our staff trained as Dementia Friends, including a Dementia Champion. KHL provides a safe space and a variety of groups such as the Wellbeing Café and our Devonshire Drop-in sessions and commit to support and develop future projects with DFK.

VISIT SITE

Airdale Shopping Centre

Airedale Shopping Centre recognises the importance of being a Dementia Friendly shopping centre, providing an invaluable and unique service for people living with dementia in the local community.

Dementia Friendly Keighley’s new store at Airedale Shopping Centre – Brunswick Arcade – provides those with dementia a place to engage and reflect, whilst their friend or family member can shop – knowing that a loved one is in excellent care.

The Airedale Shopping Centre
Management office
Keighley
West Yorkshire
BD21 3QQ

For all general enquiries, please call the Management Office on 01535 664 198.

VISIT SITE

Barbara's Story

“My name is Barbara and I work as a volunteer at DFK.

When my husband was diagnosed 7 years ago, I wanted to find out more about the condition so I attended the Dementia Friendly Keighley AGM. At that meeting I suggested it would be helpful to have a “drop in” centre for people in Keighley affected by Dementia as this would provide a useful service.

My aim now is to support other people affected by Dementia and it gives me enormous satisfaction to see peoples faces when we’ve helped them.

It’s about being there when people need us.”

Workplace Contact Form

Contact Form

Keighley Area Committee

Initial work between CBMDC and the Alzheimer’s Society resulted in a variety of locality approaches and in Keighley this was the forerunner to the formation of Dementia Friendly Keighley, as such we are a long-time supporter and associate of the group. We recognise and value the contribution they make to the lives of local residents affected by dementia, those living with the condition and their family, friends and carers. Thanks to the efforts of the group there is improved understanding, consideration and knowledge of dementia and their town centre presence is proving a valuable resource in expanding the work further.

VISIT US

Kathryn Ruane Drop-in Coordinator

I am both delighted and excited to have joined DFK in the new role of Drop-in Coordinator.
Initially I will be focusing on the actual setting up of the drop-in element of our centre based in the
Airedale Shopping Centre in Keighley. Once we are ready to welcome our visitors we will have
created a warm, welcoming and positive space where people who are Carers and family members
can leave their loved ones who will stay with us for an hour or two, providing much needed free
time to attend appointments, browse the shops, or simply meet and catch up with friends and
family. The possibilities are endless, however they can spend their precious time-out with total
peace of mind and safe in the knowledge that their loved one is safe.
Whilst at the Drop-in, the kettle will always be at ready, there will be plenty of time to chat, laugh,
reminisce, share memories, or enjoy a relaxing hand massage…we will have a wide range of
activities available for those who would like to try something new or interesting. I am passionate
that we provide a person centred approach in our work in supporting people affected by
dementia; it is a cruel disease however I do believe that with the right support and great
understanding and love you can live well.
I travelled this very long and sometimes distressing journey with my own Mum; we as a family
looked after her at home for as long as it was possible and safe. I will never forget the anguish
that her vascular dementia brought to us all including Mum at its various stages. However to the
very end we could laugh with her, she maintained a radiant smile and loved her music.
My professional background has always been in the charity sector; working to support children
and young people (NSPCC), an international children’s charity providing healthcare and education
programmes (CIC), opening a centre to support people affected by breast cancer in Yorkshire
(Breast Cancer Haven) along with other varied projects.
I am thrilled to be in hometown working with DFK and supporting our community
Don’t be a stranger, please do come in and say hello you will be most welcome!
Together we really can make a difference to those who are affected by dementia.

If you would like to contact Kathryn either telephone the office on 07452 773 788 or email
info@dementiafriendlykeighley.org.uk

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Reflection of the Dementia Inequalities Partnership & Next Steps

Overall Reflection

Learning Points

Next Steps